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When James and his wife Jessica learned their daughter Justice would be born with a severe congenital heart defect – Tetralogy of Fallot – the emotional toll of the possible challenges and decisions they would have to face presented hurdles.
Like many parents, they were committed to giving their child the best chance at life, providing her access to the finest doctors and treatment and prevention technology.
Justice was born in August 2021, and like many TOF babies, she had temporary repair options but would face open-heart surgery in her first year of life. Justice underwent her first heart catheterization a week after being born. This unsuccessful procedure left Justice with a punctured heart, sedated, ventilated, a blood clot, and an NG Tube. A week later, a full-repair surgery was successfully performed at two weeks of age.
While at the hospital, the Ledbetter family discovered the need and benefit of having a place to rest and financial assistance to handle everyday expenses while remaining at their daughter’s bedside.
As a result of the Ledbetter Family’s experience, they established Led From The Heart. The initiative serves families with children with congenital heart conditions who have gone through similar experiences navigating healthcare needs.
Committed
We believe in honor, ownership, grit, heart, courage, and curiosity just to name a few.
More families are affected than we realize. Congenital Heart Defect affects nearly 1% (about 40,000) of births per year CHD babies endure more in their young lives than many people do in their lifetime, yet they still find the strength to smile, play, dream, and hope. Imagine the next family you help could be your neighbor.
How we got started.
Discovery
At Ledbetter's 22-week anatomy ultra-sound, it was discovered that their baby girl had an issue with her heart.
Delivery
On August 4th, Justice was born via an emergency cesarian needing immediate care to increase her oxygen levels.
Established
Previously known as JAL3 Ministries, Led From The Heart Corp name was established with the State of Secretary.